Videos of the ALS Ice Bucket Challenge took over social media throughout the summer months, but newly released figures prove that it’s much more than just an online trend.
More than 260,000 people in Canada took part, rising a total of $16.2 million dollars.
“It’s been an amazing and remarkable time to be involving in the organization,” said Tammy Moore, CEO of the ALS Society of Canada. “Obviously we’re incredibly pleased with the levels of awareness that have been raised, as well as the funds. It’s been such a dynamic shift for our organization.”
Earlier this year, hundreds of thousands of people filmed themselves dumping ice water on their head, uploaded the videos to social media and asked viewers to do the same after donating to their local ALS Society.
“We were so touched by people who were doing the Ice Bucket Challenge, but calling others out and really wanting to make a difference,” said Moore. “It’s a devastating disease, so to be able to have something a bit light and fun to do was really refreshing, but it has also meant so much to people living with ALS and their families.”
$10 million dollars of what was raised will be will be invested in research and will double to $20 million thanks to a new research partnership with Brain Canada.
The other $6 million that was raised will help fund programs that deliver critical support to Canadians living with ALS.
This is a record for donations to the ALS community.
ALS, also known as amyotrophic lateral sclerosis, is an incurable, degenerative disease that slowly takes away a patient’s ability to move, rendering them dependent on others for everyday tasks. Unfortunately, there are no effective treatments for the disease, and most patients die within five years.